Once I started noticing things in the world around me, it became a flood. There were dazzling images in the world. I had a multitude of feelings about all of them. I had to be cautious with the overwhelmedness of it because that was when I started having really serious headaches. Reminiscent of migraines, these headaches demanded a total halt to all physical activity nor were they impressed by emotional activity. Once again, I had to learn to STOP and just quietly be a non-sentient being for a few minutes or hours whichever the case may be.
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HAVE YOU EVER TRIED TO BE A ROCK IN A PILE OF GRAVEL? “Not hardly, it doesn’t ascetically please me.” YOU SHOULD TRY IT SOMETIME. IT'S NOT AS EASY AS IT LOOKS.
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I was learning to take the time to observe the physical world without judgement but only recognition. At this point, my employment became very taxing and occasionally required me to attend meetings in downtown Seattle. I had a hell of a time pacing myself so I did not become dysfunctional due to sensory over stimulation. I marveled at my need to just sit after walking a couple— ("Do you actually mean two?" YES. REALLY JUST TWO! SHE'S SUCH A WIMP.)—blocks in the city, noticing what I could notice, and slow down the stream of input. This made me feel slightly inferior to other people I knew. But feeling less than others didn't really matter because it was becoming clearer and clearer to me that I didn't have a choice. And of course after the Great Wheelchair Scare II, I never quit being simply grateful I was walking regardless of the speed. I was beginning to notice I was alive and that was a lot of stimulation in itself.
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Forty-eight hours later… Can you tell I've been gone? No, of course not. For you, it was just reading from one section to the next. For me, I have lived lifetimes between these two entries. I wrote the above then went to a movie. Was it a special movie? I don't know. I didn't think so. But perhaps I was wrong. It was Philadelphia. No big deal. A lawyer dying of AIDS gets fired allegedly for having AIDS and sues in court with a homophobic attorney. So what? I don't know…so what?
I think it is the first movie about gays I've ever seen made for straight folks. Therefore, I am not a very good judge of it. I became aware early on that it was written for straight folks. I also became aware early on that it was filmed in what I'm sure will become a terribly 90’s tradition of hand held cameras and roving around the room pictures. I’m certain this is a play to our home video age. Nevertheless, it made me instantly motion sick. In fact, to my dismay, the entire movie was filmed that way. Within twenty minutes, I was so sick that I couldn't watch the film. My head hurt so bad I took a muscle relaxant and thought I would have to leave the theatre. Just closing my eyes wasn't enough (I could still see the flickering lights) when I happened upon putting my hat in front of my face with my eyes closed and watched the movie by just listening.
So far, all this was, as you might expect, irritating but tolerable. Occasionally, I got to see a fixed frame shot or two. But visually, something about the Kaposi Sarcoma lesions on the man sent an internal somebody or several somebodies off the deep end. At the time, I, myself, was unaware of it. All I was aware of was crying, emotional pain, and an unclear understanding as to just why the movie was making me hurt so bad. (Just because everyone else cries at a movie does not necessarily make me think I’m crying over the same thing or am even required to cry.)
Oh well, it turns out between Rahne and I there was a great deal of crying and more crying. I could be okay with that. Then, there was the issue of dinner. We had to get something to go. I noticed that, although surely somewhere in there I was hungry, the idea of food made me want to throw up. This, too, I attributed to some emotional discomfort but nothing requiring serious notice. So, we got take out food for Rahne and went home.
I was okay with that too. We got home. She started to eat. We watched the last twenty minutes of Star Trek: The Next Generation. You with me so far? All of this is fairly normal and not something to raise eyebrows.
After Star Trek, I went to the bathroom to wash up before I rewound the VCR tape and watched the rest of Star Trek and maybe Deep Six Nine (my name for it). I hadn’t decided for sure yet in which order I would watch them.
I went to the bathroom. I did the most common things there that most people do. I washed my face. I combed my hair. I idly...(I cannot emphasize this enough, IDLY, not planned with intent, not deliberately, not forcefully.) I idly pondered the issue of lesions. Before I was through with my IDLE PONDERING, I noticed I could not move.
Now let’s talk about this: "I noticed I could not move.” Just what does that mean? I noticed that my hands were both outstretched to open the medicine cabinet to take a stomach pill. I simultaneously debated about the state of my headache and additional pills for that when I noticed that I had stopped moving. I was fortunately facing the mirror so I was able to clearly observe that I was not moving. At least, I was able to observe that by my peripheral vision because my eyes had locked onto a point somewhere towards the bottom left corner of the mirror and did not seem to be moving either.
For a moment, I stood there, like I had a choice, and took note of this process and wondered about its possible duration assuming as I did that the process would end fairly quickly. I noticed my arms were not moving; my hands were not moving; nor my eyes, head, torso, nor any other part of me. I wondered why. I tried to move. Nothing responded. I noticed I was taking regular breaths. I thought this was a good thing. I pondered the possibility of talking. My mouth did not move. Again, I wondered exactly how long this might take.
It took a long time. I figured there was not much else to do but sit around, figuratively speaking, and wait. I waited. I wondered if this was catatonia. I waited some more. At last, I noticed that my right leg was getting tired. I wondered what that meant.
I noticed that my right leg started giving out. I now knew this meant that things were likely to change fairly soon. I wondered in what way. I fell against the left wall. This was different. I simultaneously tried to turn to my right as if I were going to walk out of the bathroom. As I collapsed, everything got very blurry. I suspected this was from the handheld camera moving too fast. I closed my eyes. I was on the floor with my eyes closed unable to speak or move. Now, of course, that my eyes were closed I couldn’t reopen them.
The floor was very cool. It was ceramic tile. Rahne and I had picked it out. Some deep forest green color. Although I couldn’t see that right now. Once again, I was reassured by my steady, even breathing. I wondered, because I didn’t think I was gonna get up and move anytime soon, how long it would be before Rahne took a pause in her television watching to come and find out what had happened to me.
I was not terribly concerned about how long this would take, because I had nothing better to do than lay there anyway, and there was always the possibility that I would start moving before she came in and found me.
I was wrong. While I was wondering, I thought about whether she would call 911 and what they would do and if that would be helpful. Sometime in there, she did come in and was dismayed to find me laid out as such.
Because she is a thoughtful person, she talked to me while she pondered her approach. She noted right away I was breathing. Clearly, this was just generally reassuring to anyone who came in the room. Hopefully, she was going to assume that I had not had a stroke or heart attack. In my own mind, I was thinking that regardless of the circumstances, she was going to need help dealing with this.
Again, I was wrong. She pulled and tugged and gently laid me on a foam pad that Adrian liked to play with and put a pillow under my head and started that long process of reinitiating contact. (I'll bet you're curious as to just how that's done.)
She talked to me and touched my fingers and face looking for a response. My job, of course, was trying to find some way to respond. "Can you squeeze your eyelids together?" No response. "Okay. It's going to be all right.”
I vainly tried to make my eyelids do something. In the course of that, I swallowed. "Can you swallow when you want to? Once for yes.” I busily tried to swallow and not dwell on the fact that “no” was going to be much harder to indicate. (Note: Always suggest one for no and two for yes because it’s much more important to be able to say no then yes.)
"Ahhh,” she sighed. I knew this meant she thought she’d established contact and things could progress from there. "Okay. Do you want me to touch your fingers? One swallow for yes.” I tried a couple piggy back swallows for no. The best place to start, really, in this kind of circumstances is with my eyes.
"No, okay. Do you want me to touch your face? Once for yes." I swallow. “Your mouth?” I attempted two swallows which felt more like choking. "That wasn't very clear to me. Your eyes?" Gratefully, I swallowed once. And then, baby, when you get those eyes to stay open and blink on command and then focus, you are halfway home to deliberate movement. Give that woman a cigar!
Unfortunately, shortly after deliberate movement came very bad what I call “shaking” which is some form of convulsions. But, hell, that's another story.
* * * * * * *
I just want to add here that any discussion about what the the issues were surrounding contemplating the lesions themselves tends to cause me or all of my parts to want to self-harm. Therefore, I’m taking a break from that.